My child's just been diagnosed with haemophilia
Finding out that your child has haemophilia can come as quite a shock, and at first you may wonder how you will be able to cope. While it can be difficult at first, rest assured that the condition is very manageable.
At first, you are likely to have a lot of questions about what having haemophilia means for your child, and for your family as a whole. The good news is that, these days, most people with haemophilia can expect to live long and active lives as a result of advances in treatment over the last 40 years. Importantly, the more you understand about your child’s condition and how it can be managed, the more in control you should feel. This website is a great place to start and your Haemophilia Treatment Centre will also be a great source of information.
It’s important to remember that how you react to your child’s haemophilia will help impact how they see themselves and their condition. While it’s natural to want to protect your child as much as possible, especially when they are very young, letting them find their own boundaries (within reasonable limits of course!) is essential for building your child’s self esteem. The good news is that most parents find they become more relaxed over time as they learn more about haemophilia and how to manage it effectively.
Although your child has a rare condition, it’s important to remember that you are not alone. There are many families in Australia, just like yours, who are dealing with the effects of haemophilia. You might like to ask your Haemophilia Treatment Centre whether they can put you in contact with other people in your local area who are going through similar experiences.