If someone you know has haemophilia, you probably have some questions about how their condition affects them. The good news is that, these days, people with haemophilia can expect to live long and fulfilling lives as a result of advances in treatment over the last 40 years. However, as with any chronic disease, there will no doubt be some challenges along the way – and this means that you are in a great position to provide your friend or family member with any support that may be needed. This may be as simple as encouraging them to open up about how they are feeling, or learning more about haemophilia so that you can better understand what they are going through.
As they say, knowledge is power! And the more you understand about haemophilia, the better able you should be to provide support. The information on living with haemophilia on this website is a great starting point, but you might also like to ask your friend or family member to explain their condition to you as they will likely be very knowledgeable about it.
However, it is also important to remember that everyone is different and while some people may be very open about their bleeding disorder, others are more private and may not be comfortable with openly discussing their condition with friends and family.In general, the best thing you can do is let your friend or family member with haemophilia know that you are there for them if they do need your support.
The more you understand about haemophilia, the better able you should be to provide support.