Finding out that your child has haemophilia can come as quite a shock, and at first you may wonder how you will be able to cope. However, over time you should adjust to the situation and feel reassured that the condition is very manageable.
While every family is different, you might like to consider these tips for coping with haemophilia that other parents have found helpful:
- It can be difficult at first, but you will need to accept that you cannot change your child’s diagnosis. However, rest assured that there is a lot you can do to help ensure that they stay as healthy as possible and grow up to be confident and well-rounded.
- Treat your child as normally as possible. Don’t wrap them up in cotton wool, but instead let them explore the world and establish their own boundaries, wherever possible.
- Don’t be frightened by things people who are not experienced with haemophilia might say or by the experiences of other parents. There are many misconceptions about this condition and there is also no typical person with haemophilia. Rest assured that your child will not necessarily have the same problems as another child affected by the condition.
- Knowledge really is power. The more you understand about your child’s condition and how it can be managed, the more in control you should feel. The information on living with haemophilia on this website is a great starting point.
- Don’t isolate yourself from others and use all support that is offered to you. Your Haemophilia Treatment Centre is a great source of information and support, and they should be happy to help you with any concerns you may have. They should also be able to help put you in contact with other families in your area who are going through similar experiences.
- Treat all bleeds early to avoid long-term joint damage. You can find more information on treating haemophilia on this website or ask your Haemophilia Treatment Centre.
- Although it may be your first instinct to direct all your energy into your child, it’s important that you look after yourself too. Continue the activities you enjoy, and make sure you take some time out for exercise and relaxation.