Telling people at school about your condition

Deciding whether to share information about your haemophilia with others at school is an important consideration that you and your family will need to think about. Everyone is different and while some people may be very open about their condition, others are more private and may not be comfortable with disclosing this information to their friends and classmates.

There are many reasons as to why you would choose to tell – or not tell – others about your condition. Ultimately, you probably need to think about whether telling a certain person about your condition will make your life easier or more difficult. One of the key benefits of telling your friends is that you can then talk to them about how your condition affects you, and they can help you cope with any challenges that you may be facing. It’s also worth considering how your friends might react if you don’t tell them and they find out from someone else later on. They might be offended that you didn’t feel that you could trust them.

There are many misconceptions about haemophilia so if you do decide to tell your friends and classmates about your condition, you will probably need to spend some time explaining to them what the condition means for you.

Either way, it’s important that everyone respects your decisions regarding whether you choose to tell your friends and classmates about your condition. However, you should remember that there are certain people who will need to know that you have haemophilia so that they can assist you where necessary. This includes your teachers and the school nurse (if you have one). You should talk to them about whether you feel comfortable with your classmates knowing about your condition to help ensure that your decision is respected.If you have any questions about disclosing to others that you have haemophilia, your Haemophilia Treatment Centre should be able to assist you. Additional sources of information that may assist you in discussing your condition are also available from your Haemophilia Treatment Centre including MEDIKIDZ Educational Books and for a younger audience, a book called MY FRIEND BEN NEEDS FACTOR.

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